Hello Dr. Blake. I hope your vacation was rejuvenating!
You asked that I resend the email below after your return. Here are a few updates as well. Thank you so much for your generosity.
Pain Relief:
I got a medical marijuana card last week. A daytime tincture hybrid of THC/CBD keeps me alert while reducing pain. The nighttime tincture is 100% Indica for sleep. To my surprise, the daytime product has reduced my pain considerably, particularly around the tibial sesamoid. I’m mainly feeling nerves, but in a lower pain range.
The amount of pain I have right now is bearable, which makes me more resistant to surgery. It feels good to have the boot off. I’m still putting all weight on my heel and outside of foot. Only a few steps here and there. Doing exercises recommended by physical therapist. Still in wheelchair most of time.
Doctor Opinions:
Here is the full array of opinions that have my head spinning.
Dr. A (podiatrist): Recommends removal of both sesamoids, rebuilding of MTP joint, shave bunion bump. Should all be done all at once in order to maintain my gait, but also recognizes it will be a difficult recovery.
Dr. B (Dr. B's partner): Recommends removal of tibial sesamoid only. If that doesn’t work, then follow with 2nd sesamoid removal, followed by reconstruction of MPT. More conservative approach, but possibility of 3 separate surgeries.
Dr. C (my chiropractor): Advises against surgery because of complexity of foot, but if surgery is necessary, then do it all at once. He recommended Dr. D for a second opinion.
Dr. D (third podiatrist): Not rushing into surgery after reviewing the MRI.
#1 - He thinks the tibial sesamoid is not that deformed, and the pain/inflammation is likely severe osteoarthritis aggravated by the accident. He also thinks some nerve pain may be originating in my lower spine...L4, L5, S1. He asked for a workup from an ortho spine doc. If foot surgery is necessary, he recommends it all be done at once.
Dr. Blake's comment: This is my choice of direction, but CRPS has not been discussed?
#2 - He is concerned with osteopenia in the big toe joint, and not confident that pins would hold. He wants a workup from an osteoporosis specialist, before he would consider surgery.
CNP (my primary provider): She did not understand Dr. Haas’ concerns.
#1 - She doesn’t agree lower spine should be an obstacle. She ordered x-rays, and results were as expected.
Mild degenerative disc disease at L4-L5 and L5-S1 with disc space
narrowing. Facet arthropathy is present throughout the lower lumbar
spine. No acute fracture or malalignment is seen. No evidence of
spondylolysis.
#2 - I had a bone density last March, and there is osteopenia everywhere. It's being treated with Vit D3 caps, and calcium through diet. Marcie doesn’t see a problem with pins holding.
She said I’m between a rock and a hard place, but agrees with Dr. B; one bone at a time.
Dr. Blake's comment: In California we have pain specialists that are neurologists, physiatrist, or anesthesiologists who need to be consulted. Dr. D was right about the nerve part, but CRPS type 2 is nerve hypersensitivity from nerve injury. This has very specific treatments.
Finally, my physical therapist): He has seen my ups and downs more than anyone. Most recent trend is down, so he can’t even do exercises with me, and we've cancelled appointments until this gets sorted out. He said it will be a difficult recovery, but he recommends the full surgery.
Dr. Blake's comment: The full surgery is only recommended by caring people who want desperately to help you. You can not blame, but if the pain is neuropathic, the surgery is going in the wrong direction. See if there is a neuro-physical therapist in your area. They have a national organization and are attuned to CRPS.
Me: When feeling my foot prior to medical marijuana, I am resigned to surgery. Feeling my foot right now, under the effects of medical marijuana, I don’t want surgery.
Bottom Line: where do I go from here?
Warm regards,
Common presentation of CRPS post injury
Dr. Blake's first response after vacation (3 weeks ago), but before the two photos above were seen.
Just read through all the emails to get my brain working. Do you have any images you should send of xrays or MRIs? If you have surgery on your foot, you only want the tibial sesamoid removed for sure. More and more surgery at one time is less predictable, and more trauma to your body. You had a very bad accident, which everyone wants to help you with, but more surgery does not make sense right now.
Secondly, I treat patients every day with tibial sesamoid fractures, and no one hurts like this. The crush injury may have caused a complex regional pain syndrome to develop which behaves like this. If so, you need a sympathetic block in your back soon. So, please have a neurologist or pain specialist work you up for this to rule it out, but also to treat the pain. If you are having nerve pain from this, surgery may make you worse unfortunately. So, get away from the surgeons for a few weeks and focus on nerve pain and its treatment. Send me any images. Keep up with the cbd oil which works well for nerve pain in some/most patients. Rich
I’m writing because I’m stuck, and need to make a decision on treatment for my foot. Last night, I had another high pain episode. My physical and emotional reserves are depleted after 5 months since the injury.
It is very generous of you to provide your expertise, and i cannot imagine how busy you are. While understanding that, I also need to make a decision soon about surgery. I’ve been putting it off for months, and my foot is only worse.
Is it possible to talk by phone/Skype, or do you have enough info to make a recommendation in writing? I am so happy to make a contribution to your blog or pay you outright for your time. I just don’t know where else to turn.
With respect,