I have been reading your blog religiously in light of my increasing foot problems. Your blog is a huge source of trustworthy information and education for anyone suffering from foot problems. Thank you for the time and care you have put into this blog because it is truly rare to find quality, trustworthy information out there regarding some of the more obscure foot problems you write about.
I am writing because I have bilateral accessory navicular syndrome, with my left foot giving me the majority of the pain. I am a 24 y.o. female who has recently moved to NYC (relevant detail).
I was diagnosed with ANS in 3rd grade when a kid threw a frisbee right at my foot in gym class, which caused my left foot to roll. I limped around all day after that, and experienced pain in my arch for the first time. I went to see the podiatrist, and he told me I had ANS and prescribed custom orthotics. He also put me in a small boot and soft cast for about 2 weeks. He mentioned surgery was a possibility if my pain persisted. I continued to wear my orthotics for a very long time without any additional incidents of pain. I did notice that if I walked more than usual, my left foot would be a little sore, but the pain would alleviate with rest.
Unfortunately, when I left home for college, I got the idea that I no longer needed my orthotics. I met a running coach at a tennis shoe store who encouraged me to leave my orthotics behind to “train” my foot to properly hold itself. I naively listened to him. I became more active during college and started doing things such as running and yoga. Unfortunately, my left foot started giving me more problems during this time, and I was wearing unsupportive shoes often, such as flats and flat sneakers. If I ran/walked more than usual, my foot would ache the next day but it would always recover with rest. I thought that this coming and going of foot-aches and pain was just my “new normal”. But in general, I did not have pain.
Last year I went on a trip to SF, and the combination of wearing new chunky heels, walking up and down the inclines of SF, and overall just A LOT of walking, my feet just gave out. Not only did I experience arch pain, but I also experienced pain at the ball and heel of my foot. Bearing weight on my foot was just terrible. It took me a WEEK of wearing supportive tennis shoes (no orthotics), elevation, and icing it for my foot to feel better.
After that incident, I have just not recovered fully. 6 months ago, I moved to NY and now walk more often than I did in TX. The pain has become chronic and dehabilitating. I went to my old podiatrist and he prescribed new custom orthotics and put me in a soft cast and Cam walker boot for 2 weeks and Cam walker with ace bandage for the following 2 weeks. When he took an Xray of my left foot, he said that I actually have 2 small extra bones instead 1. He also gave me PT exercises to do. However once I was out of the Cam walker and I started walking <1 actually="" again="" allows="" and="" as="" back="" because="" but="" cam="" did="" do="" doing="" exercises="" flare="" getting="" groceries.="" help="" i="" increasing="" independently="" insurance="" into="" issues.="" it="" me="" mile="" much="" myself="" not="" of="" pain="" pt="" put="" recovery="" simple="" slower="" span="" supervision="" the="" them="" things="" time.="" to="" up="" walk="" walker="" was="" with="" without="" would="">1>
I went to see podiatrist #2. He was very confident in recommending a cortisone shot, with the idea that he would give me 2. He gave me the shot right above my AN bone, and I reacted terribly. I could barely walk home from the subway and the pain was present for 1.5 weeks. I could not bare weight on it at all or wear the Cam walker because I had a bruise where the doctor injected the shot. I took Diclofenac Sodium for an NSAID but it did not really help with pain.
My doctor podiatrist failed to tell me any possible side effects before administering the shot, and I was completely blindsided. I felt worse than I did before getting the shot. This doctor says he doesn’t know what to tell me. I really want to avoid surgery. He says I can try doing 7-8 sessions MLS of laser treatment or PRP (Platelet rich plasma) injections. Have you heard of those treatments? He tells me that he cannot tell me the success rate that he’s had with these treatments since my situation is unique. He has also prescribed PT but I have yet to find a physical therapist yet.
I haven’t had an MRI yet, but he said he could justify ordering one if I wanted. Money is tight for me at the moment. I am trying to evaluate if it is worth getting an MRI. I don’t know if there is tendon or ligament damage or bone edema, etc.
I would like to do PT and find someone experienced with this condition. Is there a case in which a patient with ANS/PTT should NOT attempt PT…. for example when should & should not a patient start doing PT? I just don’t know if my feet are ready to do PT.
I don’t feel l pronate with my orthotics on, and my arch does not look collapsed/flat. I rest, ice, and elevate my feet. Epsom salt soaks help a little. Should I be using heat also? The pain is under my arch, and if I walk to much (especially in the CAM walker), my calves, glutes, and leg get sore. If my foot starts hurting while I am walking, there is sometimes a shooting pain up my posterior tibial tendon. I tend to shift my weight more on my right foot now and it is beginning to hurt also. The outer right ankle sometimes aches while walking.
I am seeking your opinion because my current doctor seems to not have an opinion on my condition. After the disaster of the cortisone shot, he seems to not want the responsibility of making any recommendations. I really want to try as many conservative treatments as I can as I am very adverse to the idea of surgery. However, I don’t want to hurt myself by prolonging this process.
I appreciate your time and knowledge so much. I can send you pictures of Xrays (might take time) or my foot if you suggest.
Thank you in advance for your help.
Thank you so much for your quick reply!