My son, Oscar, has a large lump on his foot - it's about the size of a squashed grape.
We've seen a couple of specialists in the UK but they have seen very few children with this condition, and none as severe as Oscar's. I am trying to avoid surgery because of the high recurrence and the other significant problems it can cause.
Do you have any suggestions, or can you point me at any research or specialists?
I am looking at:
- Radiotherapy, but cannot find anyone with experience of this for children
- Orthotics; we have some that help but again it's hard to find anything specific for children
- Other options, e.g. collagenese, but again it's hard to find anyone with experience with children
Thanks for any help or pointers.